I’m quite amazed by the discussion forum’s on internet websites such as rheumatoidarhritis.net and the size and complexity of the replies they get. The advice and good-humoured response is well worth reading and questions come in from all parts of the world. People with just RA/RD and those others who have multiple other diseases to cope with as well. It makes me feel lucky, yes lucky to just have RA.
The one most interesting points I have gathered from reading these is that EVERYONE IS DIFFERENT. Drugs that work for one person don’t work for another. Rheumatologists come in excellent – good – poor and simply terrible! I seem to spend lots of time saying ‘if you can’t get on or don’t get good results from your Rheumatologist’s advice – then CHANGE THEM ‘! It took me several years and four changes to find the excellent one I have now and you should always bear in mind that you need to confide in them for the rest of your life so don’t put up with second best !
The next interesting point is the large variety of drugs that are out there and everybody seems to use a different combination from Biologics to NSAIDS to pain patches, thus emphasising my point that what works for one does not necessarily work for another. There is no set guarantee for any of them, but if you feel you are getting worse, then that is the time to insist on a change of medication from your Rheumatologist or to take an alternative route. I find it very helpful to write down a list of symptoms over the six month period between visits to mine as a touch of ‘brain fog’ usually renders me totally speechless when I actually get to see her !
There are also the useless ‘cures’ that some joker puts in. Delete them, they are not worth the trouble. However recently I have noticed a few people mentioning the really good results they are getting by altering their diet. Amongst others, I decided to have a go at the Clint Paddison Program. He lives in Australia and had severe RA. Seven years down the line he is now free of the symptoms and off all the drugs and has started a family!! I decided it had to be worth a try and it can all be done on line. So far no money has changed hands, but I expect it will further along. I am getting an email from him every couple of days with how to start, which basically means giving up first milk and then all dairy products. I’ve only been on it six days and already my sharp pains have reduced to aches which is great incentive for continuing. I always thought I never drank much milk, but I had it on my muesli, in my tea and coffee and goodness knows what else ! I find it hard to credit, but it seems to work ! Quite frankly I am amazed how one’s diet can bring about such changes. I appreciate its not going to be a quick fix, but any, and I mean any reduction in my pain level is worth the effort. If it can work on me aged 70, then all you young things should have no problem !!
I will give you an update in a few months along the line as to my progress. In the meantime keep up with all the excellent information being discussed on line and why not put it a question, or an answer yourselves ?