SPRING IS SPRUNG !

Here in SW Ireland it is suddenly Spring and the sun is shining down into all those corners where cobwebs lurk and muddy doggie paw prints adorn the floor ! The rescue cats, Roobarb & Custard are living off a diet of baby rabbits, or sitting below the bird table waiting for one to fall off !  Cooper our labrador has discovered the delights of any muddy puddle he can find and has taken to sitting down in the small pond we pass on our morning walk.  I think he likes the cold water effect on his poorly knee and this week on our way to get Pat out of plaster, we have to take Cooper to the vet first too have his knee replacement !  Nothing like having everything happen at once is there ?!
I have sneakily asked my son Mark to visit us from Germany for 10 days to help cope with Himself and the dog as I foresee lots of lifting coming up, so he flies in tomorrow to Kerry airport from Frankfurt Hahn and Mum here has to go and pick him up.  Also I suggested to Pat that he could probably hoover whilst sitting in the Power Chair and this has proved relatively successful, so much so that he combined it with dusting everything he could reach up to waist level – so we are halfway there !
The nicest thing I have to report is that my Word for iMac code eventually arrived and I achieved its ‘Easy Download’ after lots of swearing and pressing buttons.  I then shut my eyes, put in the pen drive with my book on and did lots of praying ! Much to my relief it downloaded, pictures and all,  so caught up in the Springtime fever I wrote an astonishing letter to a Publisher and posted it off ! We shall see how that transpires.
When I wrote my last book ( in 1989 and pre. RD diagnoses!! ) I had to do lots of TV, radio and other such promotions, including The Late Late Show, so it has slightly caused me to wonder how I would cope with all that and my RD – doesn’t bear thinking about !  Writing a book leads to all kinds of other work, sometimes even paid work !  I can distinctly remember being asked by the World Wildlife Fund to travel to the Shetland Islands to write an article on Otter Conservation, along with journalists from The Times, The Telegraph and several others ! I had to fly to London, then to Aberdeen and thence to the Shetlands in the middle of winter.  Luckily I had taken one of Pat’s survival suits with me so I was the only one properly dressed.  I just recorded the answers to the questions asked by the other journalists, so I managed to scrape by, though we never saw a sign of an otter, except a dead one that they took out of a freezer which was waiting transportation to Aberdeen University and looked nothing like the real thing.  How do I know that ? Well, we have otters in the stream at the bottom of our garden, though I never mentioned that at the time !! Happy Days !
My RD has taken a pounding over the last few weeks and in desperation I went to my GP and asked for help. He has slightly changed my medication (from Cataflam to Arcoxia) and the difference in pain levels is remarkable. I actually feel much less sore, though I am still on the Humira and Methotrexate.  I’m trying to rest for an hour each afternoon, but the advent of Spring has tempted me outside and I’ve now got a sore back from trying to do some weeding! Such is Life and I’m wondering if Mark will remember how to weed after living in Germany for so long – let’s hope so !!

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Our garden in Springtime !

SURVIVING A CRISIS !

First a little background. I have moderate to severe Rheumatoid Disease. For my European friends who still call it Rheumatoid Arthritis, I am from now on deferring to our American cousins who have got fed up with the word ‘Arthritis’ and people automatically assuming that is all you have. For those new to my Blog, RD is an autoimmune disease that is incurable and affects many organs in your body apart from just joints. The drugs that are available for it have absolutely no effect on ‘arthritis’ and have varying effects on the chronic pain and severe fatigue that come as added extras to Rheumatoid Disease.
Next – I live on the Beara Peninsula in the far SW of Ireland. My nearest neighbour is about quarter of a mile away. We have beautiful mountains around us, clean air and dark skies and are about half a mile from the sea – the Atlantic Ocean, next stop USA ! So, sparsely populated, so much so that I know no-one else who has RD around here. Hence the Blog which has had the marvellous effect of linking me to the rest of the world and thousands of people who also have RD – so I am no longer alone from that point of view. I live here with my retired ex-Drilling Superintendent husband and although it is now two years since my last operation on my right foot, he looked after me wonderfully till 4 week’s ago.

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The Beara Peninsula

Crisis time ! He slipped and fell in the garden and broke his ankle, so my first very abrupt job was to drive him to hospital, after not having driven for 2 years ! Worst of all was parking by the hospital in the very busy car parks, but it does come back like riding a bicycle and we did the 160 mile return journey without too many scary moments ! He was plastered and put on crutches and told not to put his foot down for six weeks, so in a trice I became the carer instead of the cared for !
I can only walk about a quarter mile, but we have two dogs who needed walking, so it was out with my Quingo into the pouring rain, which I actually rather enjoyed ! This was after having to wake up in the morning, get tea and let the dogs out and then make breakfast. Help Pat dress and get him to the breakfast table. Anyone who has spent time on two crutches will know that it means you are unable to carry anything, so I became the Fetcher and Carrier. The house had to be cleaned so I dusted off my I-Robot Roomba and put my tired self into cooking lunch mode whilst it zoomed around hoovering the floors. Seeing it whizzing around reminded me that I had a Power Chair in the garage, so my son was called over and he got it working again for his Dad who was delighted at now being able to get around the house without the crutches and, in all fairness this made him very useful for all jobs involving bending from the waist – something that gives me alarming backache ! So he was put in charge of the washing and tumble drying, setting the table and at this very moment is cleaning all the cupboard fronts in our Kitchen that haven’t received such attention in years !! So not all bad.
Afternoons are spent shopping and Pat wants to come, even though he has to sit in the car whilst I shop ! (I did this for eight years during and after various operations). I can push the shopping trolley just fine and put the stuff from the trolley into the car, but getting home is a whole new game! in that I cannot carry anything heavier than a handbag without my wrists collapsing. The remedy for this was first to get Pat safely out the car and into the house, then go back to the car with a barrel trolley that I found in the garden shed and which I can push as far as the kitchen door loaded with the shopping. Then unload it slowly and get Pat to put anything away in places he can reach. I do the rest. Next comes preparing dinner ( how I would love a Cook/Housekeeper right now ! ) I actually love to cook, but when it has to be done every single day, it’s exhausting ! During the years when Pat worked away all over the world, I spent long months on my own pre and post op. I was very careful to only confine myself to a couple of rooms, eat ready prepared meals and sit in my chair and watch telly in the evenings. Now I have to feed dogs and cats, let them in and out the door (how I would love a Doorman too !) cook and serve dinner, clean up, load the dishwasher lock up and sink exhausted into bed. My knees, hips, hands and wrists ache and my walking speed is reduced to a crawl!
On the bright side, he only has two more weeks to go and then back to Cork for walking boots so I am just hoping he gets used to them very very quickly ! Also I have come to realise just exactly how much he was doing for me before the crisis occurred – but I am secretly longing to just be able to throw myself into my bed for an afternoon rest – what luxury that will be !!

A PAIN IN THE BACKSIDE……

Here I am, two days late at doing my Blog due to a severe pain in my coccyx !  And where is that you may ask ?  Well, its down at the base of my spine and liberally sprinkled with arthritis of some form or other.  On the whole it remains quiet and dormant, but about a week ago it decided to say “hello, I’m still here” – just in case I had forgotten it and slip a disc just a teensy bit to one side.
There is nothing quite like the pain of a slipped disc – it puts all your aches and pains into the shade and what’s worse is knowing that there is absolutely nothing you can do about it.
The moment I felt it, off I went to my GP and got some super new medicine for sudden severe pain which I was to take twice a day for 10 days and it seemed to work.  ‘Seemed’ being the operative word, because the moment I completed the course, back it came again shouting “Here I am, Fooled You” !! And, of course, my GP is now lying on a beach in the Canaries till 6th March.
I’m OK apart from sitting down and standing up when It feels like someone puts a knife in my back and then wires it to the mains supply and you don’t know whether to go on getting up or collapsing from whence you came.
So I retired to bed with my hot pack in place and decided to stay absolutely still.  This worked fine until I needed to go to the loo which involved getting up off the bed, sitting down, standing up and then going back to bed again – moves which were accompanied by loud shouts of pain as I find that sometimes giving vent to the pain actually helps me ! (A bit like yelling when you have a baby !)  Not my husband however, who came running each time I shouted to see what fresh disaster had happened and then when I actually needed help having knocked my glass of water all over myself, failed to show up as I had cried wolf just that once too often !!
That was two nights ago and I ended up repeatedly throwing up all over Pat who held a bowl in front of me as I couldn’t bend down to be sick in the loo !  That guy deserves a very large and shiny medal.  I know we said ‘in sickness and in health’ all those years ago, but he really is my rock and takes all my RA in his stride.
So last night I actually slept almost through and today the really sharp pain is gone.
My coccyx is still muttering and grumbling, but I am up and walking around again – very carefully so as not to wake the sleeping monster and with any luck I’ll be back to my Sunday Blog as usual.images-1.jpeg